I got approved for the chemo and I was able to get my first dose Thursday. Surrounded by the prayers of so many trusted prayer warriors, I felt God's peace as I took the first pill. I kept it down without any nausea at all. PRAISES TO MY LORD for that. Susan, Risa, Julie, Mary Ruth, Margie, Jackie, Cole, Sarah, Penny, Ann, Peg, Lee, Jackie, and Earleen, you guys ROCK as prayer intercessors and doing spiritual warfare against the enemy. You well supplemented Richie's and Sam's prayers. I felt angels surrounding me, battering down the fears and anxiety that day. How can I ever say thanks? I will just have to pay it forward to y'all when your needy times come.
I double the dosage in 1 week. I am hoping that doesn't change anything in terms of nausea.
The final 2 weeks of getting approved for the program to get the drug early was highly stressful. When I came home Friday after being in SF 3 times that week, probed and tested and picked and tapped and scanned and MRI'd, I walked in and promptly slept for 6 hours in 2 different afternoon naps. THAT's how wiped I was. I admit I am still not back up to snuff. But the wait is over and now my prayer is for the effectiveness of the drug to be evident.
I'll welcome any prayers for that. This drug is my last hope (medically speaking). My real hope lies in Jesus and His mighty healing power.
Sunday, April 23, 2017
I am a grammar buff, and proud to be one. I had no choice in the matter. Spelling and grammar were areas where my parents were not lax. They wanted their kids to be articulate. We all had our grammar corrected immediately upon using the wrong word. They had a great deal of help from the Catholic nuns who educated us, who were nothing if not rigorous in teaching us the King’s English. Every grandchild, when visiting, got corrected as well. I thanked Mom and Dad many times for the gift of that early correction. Sam has thanked me many times for the same.
If a wine snob is one who appreciates fine wine, I must be a grammar and spelling snob. I like “buff “or “aficionado” better. My brain lights up when I see misspellings and hear bad grammar! I want to rectify both! I have many friends who use poor grammar and I always notice it. It is all over TV; even my favorite reality TV host uses it. Sports analysts (and Sam would agree) and broadcasters are not known for good grammar. The morning talk shows are sprinkled every day with grammar missteps. Yes, I notice every one.
Mom and Dad raised an S & G buff. I raised an S & G buff, and I have no doubt that if Sam has kids someday, their speech will be readily corrected by their papa. Because Sam had college journalism classes, he is even more knowledgeable about high level grammar rules than I am.
I have been able to use my particular area of passion in my job. My subbing in the schools was a prime place to make a difference. I swear parents don’t correct poor speech anymore. When a student asked or told me something like, “Can him and me go to the library?” I would just calmly say every time, “Ask me again using proper English.” It may have taken 3 or 4 tries, but they eventually got it right. And then I told them how they could not make that mistake again. Of course I was there only one day at a time, and without daily reinforcement, I’m sure my efforts to teach a few grammar rules went by the wayside, but I put my due diligence in anyway. I never let poor grammar slip.
In 20 years, I’ve rarely heard a teacher correct grammar in a student. Many of our teachers themselves have poor skills. THEY never learned well. One day a classroom teacher said in a conversation with me, “Him and Gary played tennis with I and Ann.”(names changed) I honestly cringed to my core. I went home and told my husband that our schools are failing our kids through parents who don’t care about speech and through many of our teachers. Not all of them. But definitely some of them. How can they turn their students into well-spoken adults when they themselves are not articulate?
My biggest bug-a-boo is with pronoun use. Learning how and when to use nominative pronouns and objective pronouns correctly should be taught from 2nd grade on. If kids learn it early----and it’s so easy to learn---- they will know it forever.
The second thing that I hear way too much of is using an adjective where an adverb should be: “He drove real careful.” (carefully, not careful) “He did good in that game.” (well, not good).
Then there is the “like” word that has permeated our culture, used multiple times in a sentence before verbs, nouns, adverbs and adjectives. What a meaningless word. Nothing sounds so “backwoods” to me as someone who cannot form a sentence without using “like.” I just like hope it is like just a fad and that it like eases its way out of our English vernacular like very soon.
Once I was subbing and saw a notice I was to send home with kids for their parents to sign. I read it and found 4 spelling and grammar errors in the notice. I left a note for the teacher and did not send it out. Our college education classes need to stress good grammar and spelling so that these young educators can pass that on.
Okay, this has become a lecture and I never intended it to be that. What I want to say is: Parents and grandparents, if you notice poor grammar, correct it. Teach it to your little ones. Pass on the gift of becoming articulate. If you don’t know good grammar, there are hundreds of resources where you can learn it! Turn your kid into a grammar and spelling buff!
Thursday, April 13, 2017
There is a possibility---a good one--- that I will be eligible to get the drug I need (before it is available through the FDA on May 15) now through a program called Compassionate Use. God's fingerprints were all over how I heard about this. I won't go into all the drama and detail of how it came about, but let me just say that I have passed Steps 1 and 2 out of 4 for final approval. Next Friday I will have brain and chest MRIs, as well as 4 other tests/labs to get an idea of my condition for the research team. If I pass, I could have the drug as soon as 12 days from now.
You may ask what the benefit is of getting it so close to the day I could get it on the open market. I realize there will only be a 3-week differential and perhaps to some it isn't worth going through all this protocol to get the drug early.
Let me tell you, when you have been sitting idly waiting since Feb.1 for the only drug that can extend your life, you grab at ANY advantage. The saddest part is I would have been eligible for Compassionate Use back on Feb.1. Needless to say, I fired my doctor and have hired a new oncologist. 'Nuf said on that.
I trust in God's providence for me. If I am supposed to be approved, I will be. If not, I wait. God is the same either way. When you trust God to order your steps, you have a peace that passes all understanding.
I remain hopeful and I will let you know if I am approved!!